Earlier this year, the Patient Partnership Index awarded the CF AMR Syndicate GOLD standard in recognition of the Syndicate’s demonstration of best practice in working with people with CF. Entrants to this year’s Index were assessed against the following six criteria: Engagement, Co-creation, Empowerment, Transparency, Innovation, and Impact. The Syndicate’s proactive involvement of people with CF, recognising them as experts of their condition and bringing valuable knowledge, exemplified how organisations can best engage and communicate with patients and the groups that advocate for them.
Read more on the 2022 Patient Partnership Index awards here.
